National Data Opt-Out (NDO-O)
The national data opt-out was introduced on 25 May 2018, enabling patients to opt out from the use of their data for research or planning purposes, in line with the recommendations of the National Data Guardian in her Review of Data Security, Consent and Opt-Outs.
Patients can view or change their national data opt-out choice at any time by using the online service at www.nhs.uk/your-nhs-data-matters or by clicking on “Your Health” in the NHS App, and selecting “Choose if data from your health records is shared for research and planning”.
Your health records contain a type of data called confidential patient information. This data can be used to help with research and planning.
You can choose to stop your confidential patient information being used for research and planning. You can also make a choice for someone else like your children under the age of 13.
Your choice will only apply to the health and care system in England. This does not apply to health or care services accessed in Scotland, Wales or Northern Ireland.
What is confidential patient information
Confidential patient information is when 2 types of information from your health records are joined together.
The 2 types of information are:
- something that can identify you
- something about your health care or treatment
For example, your name joined with what medicine you take.
Identifiable information on its own is used by health and care services to contact patients and this is not confidential patient information.
How we use your confidential patient information
Your individual care
Health and care staff may use your confidential patient information to help with your treatment and care. For example, when you visit your GP they may look at your records for important information about your health.
Research and planning
Confidential patient information might also be used to:
- plan and improve health and care services
- research and develop cures for serious illnesses
You can stop your confidential patient information being used for research and planning. Find out how to make your choice.
If you’re happy with your confidential patient information being used for research and planning you do not need to do anything.
Any choice you make will not impact your individual care.
Overview – Choose if data from your health records is shared for research and planning – NHS (www.nhs.uk)